admin – Winning The Fight

SUMMARY OF DEANNA’S PROGRESS IN 2019

admin — Wed, 06 Oct 2021 05:31:46 +0000

SUMMARY OF DEANNA’S PROGRESS IN 2019

Dear friends and family,

As we come to the end of another year one reflects on the past and what is to come. I am pleased to announce that Deanna’s ALS has not progressed which is unheard of with this disease. Since the cause of her disease was unknown until 2015 the disease progress was slowed with the DP but loss of function continued. Once the causative agent of her disease was identified we were able to treat it and eliminate the causative agent , a borrelia infection.

Currently we are attempting to provide return of function using autologous stem cells. To date she has had two administrations in Cancun in February and August of this year. Her cells are grown in a laboratory in Houston but the FDA does not allow administration in the US. She has had some improvement in speech, muscle strength and endurance. The plan is to repeat the stem cells in February 2020. We will add hyperbaric O2 with the hope of enhancing cell energy to improve the result.

During this more than ten year medical research odyssey I have been fortunate to be in contact with several other clinicians who have come to the same conclusion as me. ALS is caused by a bacterial infection usually the genus borrelia of which there are many species and at times Co-infections. Concomitantly all agree that many if not all neurodegenerative diseases are caused by a bacterial infection usually various species of borrelia.

A provocative antibiotics test has been developed to identify the borrelia bacteria. To date every patient with a neurodegenerative disease who has taken the test has tested positive for a borrelia infection. This includes ALS, PD, MS and most AD. Testing has to be done at a specialty lab b/c commercial labs do not have the correct antigens. I know this appears unbelievable. Deanna’s response to antibiotic treatment made me a believer.

Neuroscientists refuse to accept a bacterial infection as the causative agent of these diseases. There are many reasons for this and one would think that after spending billions of dollars on research every year for these diseases, in some cases for over 100 years, that they would question their failed approach.

There is now a proposal for a clinical trial before an internal review board at UT San Antonio to administer the provocative antibiotics test to all patients with a neurodegenerative disease and test them at a specialty lab that has the appropriate antigens.

www.Winningthefight.org [ WFND ] our 501c3 not for profit foundation would like to assist in clinical trials to establish the cause and the best treatment for neurodegenerative diseases. Your tax free donations to WFND will assist in this endeavor.

Sincere good wishes for a healthy and prosperous 2020,

Vince Tedone

DEANNA STEM CELL THERAPY RESULTS

admin — Wed, 06 Oct 2021 05:44:49 +0000

DEANNA STEM CELL
THERAPY RESULTS

DEANNA STEM CELL THERAPY RESULTS

The Pulsed Method Helped Deanna

Deanna received stem cell therapy in February and again in August of 2019. Since receiving her first round of stem cells, Deanna’s speech therapist has noted the following changes in her sessions. been noted in therapy sessions:

Reduced nasality overall when speaking; and moments of nasality were classified via a slight “leak” of air vs more of a continuous burst of air that was taking place throughout sets pre stem cells. Deanna also reports that the air does not fully pass through her nose as it was previously.
Less visible “force/strain” when talking with oral musculature and neck muscles
Ability to hit speech sound targets with greater ease and clarity
More control in modulating fast vs. slow pacing in sets of vocal exercises. She has also changed set format to include slower more deliberate production to work on enunciation as well as musculature control.
Continuing to beat previous records across vocal exercise sets
During sessions where fatigue is present, her ability to complete sets is not impacted by fatigue the way one would correlate (i.e. increased fatigue, decreased performance). Deanna has had sessions in which she has met new records on days in which she is experiencing increased fatigue.
Overall improved volume

Deanna is being treated by Brieann Y. Papp, M.S. CCC-SLP – Speech & Language Pathologist and owner of All About Speech and Language, Tampa, FL

Physical Therapy Improvements

MMT			12/5/18		8/8/19
JOINT	MOTION	POSITION	LEFT	RIGHT	LEFT	RIGHT
Hip	Flexion	Seated	4-	4	4	4+
	Abduction	Seated	5	5	5	5
	Adduction	Seated	5	5	5	5
	External Rotation	Seated	4+	4+	4+	4+
	Internal Rotation	Seated	4	4	4+	4+
Knee	Flexion	Seated	5	5	5	5
	Extension	Seated	5	5	5	5
Ankle	Dorsiflexion	Seated	2	2	2	2
	Plantarflexion	Seated	5	5	5	5
	Inversion	Seated	4	3+	4+	4+
	Eversion	Seated	3+	3+	4-	4-
Shoulder	Flexion	Seated	2	2	2	2
	Abduction	Seated	2	2	2	2
	Adduction	Seated	4+	4+	4+	4+
	Internal Rotation	Seated	4-	3+	4+	4
	External Rotation	Seated	Elbow Ext. with attempt bilaterally		Unchanged
	Extension	Seated	4+	4+	4+	4+
Elbow	Flexion	Seated	4	4	4	4+
	Extension	Seated	4	3+	4+	3+
Forearm	Pronation	Seated	3	3	3	3+
	Supination	Seated	3	3	3+	3
Wrist	Flexion	Seated	3+	3+	3+	4-
	Extension	Seated	3+	3	3+	3+
	Radial Deviation	Seated	3+	3	3+	3+
	Ulnar Deviation	Seated	3	3	3+	3+
Finger Intrinsics		Seated	Digits 1, 4, 5 extend; 2, 3 remain flexed; able to make closed fist		Unchanged

Deanna Tedone
Cathy Kuba, PT, MPT, DNSET
Red denotes improvements

THE PROVOCATIVE ANTIBIOTIC TEST

admin — Wed, 06 Oct 2021 04:56:50 +0000

THE PROVOCATIVE
ANTIBIOTIC TEST

The Provocative Antibiotic Test was devised by Alfred Miller, MD to determine if your neurodegenerative disease is caused by the borrelia bacteria and co-infections.

For 21 days take orally Azithromycin 500 mg/day and Flagyl 500mg/day.

The IGenex test for borrelia is LTP3

The IGenex test for co-infections is CP3

Alternatively one can order the borrelia immunoblot. Then, if that is positive, order the tests for co-infections as this would be cheaper.

Any questions they can contact IGenex directly
US: (800) 832-3200
International: +1 (650) 424-1191
Email: customerservice@igenex.com

A CURE FOR ALS AND OTHER NEURODEGENERATIVE DISEASES?

admin — Wed, 06 Oct 2021 05:03:56 +0000

A CURE FOR ALS AND OTHER NEURODEGENERATIVE DISEASES?

A Cure for ALS and Other Neurodegenerative Diseases?

A Cure for ALS? I believe that the Pulse Method plus stem cell therapy may return some of Deanna’s physical function. Allow me to explain. First off, I believe Deanna’s borrelia infection is finally under control. (For those of you who haven’t heard, read more here about Deanna’s ALS and the connection with borrelia bacteria.) Onset of symptoms in 2007 were treated with the Deanna Protocol from 2009. Once we determined that she had a borrelia infection in 2015, we began a combined treatment with the CSP and antibiotics for approximately one year. There were intervening complications but approximately one year ago she was started on the Burasscano pulsed method (starting and stopping the antibiotics at regular intervals with periods on antibiotics followed by periods off).

The Pulsed Method Helped Deanna

Before I explain Deanna’s reaction to the Pulse Method, I need to explain two terms: (1) Herxheimer reaction and (2) CD 57 test results. A Herxheimer reaction is a painful inflamatory reaction that occurs when borrelia bacteria is being killed off by antibiotics. Herxheimer reactions indicate that borrelia is dying. CD 57 test results show the number of natural killer cells in the body that are able to kill off infections. When CD 57 levels are normal, this is an indication that a an infection (in Deanna’s case, a borrelia infection) is under control. Keep these terms in mind when reading my explanation below about Deannna’s reaction to the pulsed method antibiotic treatment.

Since beginning the pulsed method, Deanna has had a Herxheimer reaction approximately every 3 to 4 weeks. In the past two months, however, she has not had a Herxheimer reaction. Beyond this, her CD 57 has remained in the normal range for approximately the past year. Due to these factors, I now believe the bacteria in Deanna’s body is under control. With the bacteria under control, I now believe it’s time for stem cell treatment. With the bacteria under control, any new cells that are introduced/grown via stem cell therapy will be able to remain alive and function without becoming infected by borrelia.

The Oral Pulse Protocol

Developed by Dr Al Miller to which I have added Butyrate, used in diseases which are not progressing rapidly instead of the IV pulsed antibiotics treatment.

Every Mon, Tues, Wed, Ceftin 1000mg BID [500 mg tablets] probenecid 500 mg BID, Metronidazole [Flagyl or Tinidazole] 500 mg BID
Every Thurs. and Sat. Diflucan100 mg in AM only
NT Factor 2 tabs T.I.D every day
R-Lipoic acid I Q AM at least 30 minutes before eating
Probiotic Q.D. at noon [Culturelle} and Butyrate By Body Bio Q.D.

The Deanna protocol should be used in conjunction with whatever treatment modality is used. Treatment for all Neurodegenerative diseases should be:

The DP to keep cells alive and improve signaling b/c once function is lost it may not be possible to recover it.
Combination of antibiotics to eliminate biofilm and specific for pathogen/pathogens present

Stem Cell Therapy After Pulsed Method Treatment Should Work

Her functional deficit involves her shoulders, hands, voice, legs, feet and proprioception. I have strong reason to believe that her function will return in many areas after stem cell therapy…only because she was treated with the pulsed method to get rid of the bacteria (in conjunction with a program to replenish the good bacteria in the body too). Other patients who have received stem cell therapy without controlling infections first, have not been so lucky. For the past 10 years every ALS patient or neurodegenerative disease patient who has been treated with stem cells, around the world, has reported improvement, but then worsened as the disease continues to progress. Why?

Previous Stem Cell Therapy Trials & Why They Failed

Dr. Alfred Miller and I hypothesize that the stem cell therapy does not work with ALS patients because the borrelia bacteria in ALS patients attacks the new cells that are introduced via stem cell therapy. It makes sense, right? When a disease is spreading throughout a person’s body and you introduce new/healthy cells, wouldn’t the disease spread to those healthy cells too? We strongly believe this is the case and multiple physicians agree. If the medical community as a whole doesn’t believe it, it’s at least worth testing. But, nobody is testing it…nobody. Why?

The mainstream medical community hasn’t even acknowledged the connection between bacteria and ALS yet (even though some individual physicians do). Thus, the idea of killing off borrelia bacteria before treating a person with stem cells is not on their radar. Unfortunately, ALS patients are suffering and dying while we wait for the medical community acknowledge this idea. Actually, right now, research institutions are running clinical trials for ALS and other neurodegenerative diseases. I strongly believe that these trials will fail because the neuroscientists do not accept the fact the idea borrelia bacteria may have to be suppressed before introducing healthy stem cells into the body. Once again, stem cell therapy will be deemed “ineffective,” when in reality, it could be very effective. It just isn’t being used in the correct context.

Stem Cell Therapy Plan for Deanna

We now intend to start her on stem cells. .The source of these stem cells is at present unknown and being researched. Once the best option is determined we will post it on this web site and follow up with the result for Deanna.

Borrelia Infection in Alzheimer’s & Other Neurodegenerative Diseases

As I’ve mentioned in other areas of this website and blog, Dr. Alan MacDonald has documented borrelia in Alzheimer Disease and nematodes and borrelia in MS at autopsy. Dr. Judith Miklossy has also independently documented borrelia in Alzheimer Disease at autopsy. According to Dr. Al Miller, every Parkinson’s Disease patient that has taken the provocative antibiotics test has tested positive for borrelia. Dr. David Martz has also reversed his ALS with antibiotics. So we now have plenty of anecdotal proof from individual medical experts that neurodegenerative diseases can be caused by a borrelia infection and probably co-infections.

Changing the Course of Research

We must convince neuroscientists to begin research to determine a method to document the borrelia and co-infections in neurodegenerative diseases. Then, we may develop appropriate treatment for these infections. Once research focuses on controlling borrelia infections, research can then focus on restoring neurological function using a form of regenerative medicine such as stem cells. This could be our way to a cure and return to normalcy. Unfortunately, I doubt any research institutions will invest in this. How come?

All About the Money

Research on ALS and other neurodegenerative diseases isn’t a money maker. Any research that doesn’t result in the ability to sell/make money from a pharmaceutical drug is not a money maker. Therein lies the problem. Research institutions have to keep their doors open and pay salaries, and it takes money to do that. They don’t waste money funding studies that result in zero or little return on investment. I understand that. It’s basic economics…but should people be dying because their diseases aren’t profitable? We have to do better. We need private funders who have a personal interest in curing these diseases.

If you’d like to donate to fund our research, click here. Unlike research institutions, our administrative costs are extremely low. If you donate to us, your money will go toward research when you donate. We don’t have offices to pay for or regular salaries to pay. We’re a primarily volunteer part-time staff. The only people we pay are one part time administrative assistant and the scientists doing our research in labs at University of South Florida.

DEANNA IS ON THE PULSED METHOD

admin — Wed, 06 Oct 2021 05:53:33 +0000

DEANNA IS ON THE
PULSED METHOD

DEANNA IS ON THE PULSED METHOD

My daughter has been following the Pulsed Method of antibiotic treatment for borrelia infection. (Click this link to read more about the connection between ALS and borrelia bacteria, if you haven’t read about it already.)

Here is how the Pulsed Method works

For three days she takes IV Rocephin (an antibiotic) at 2 gms every 12 hours and Tinidazole (alternative to Flagyl, to open the cysts and allow the antibiotics to kill it).

The dose of Tinidazole that she takes is 500 mg orally twice a day, one to two hours before the Rocephin antibiotic. This protocol is specific for the borrelia bacteria found in Deanna (Borrelia Recurrentis, according to IGenex). There are many different species and strains of borrelia and you’ll need a treatment specific to the species or strain of borrelia that you have.

If you take Rocephin, you should also speak to your doctor about taking Actigall 300 mg orally 2 X a day to avoid the formation of Gall bladder stones that can occur with Rocephin.

Also, speak to your doctor about taking Diflucan 100 mg orally every Monday and Thursday to avoid fungal infections that can occur when taking high doses of Rocephin or other antibiotics.

What Deanna Takes To Replenish Good Bacteria

For seven days, to replenish good bacteria, Deanna takes PRESCRIPT-ASSIST, which combines probiotics and prebiotics to replenish the good bacteria. She takes Butyrate too, which is food for the good bacteria, to keep them alive, and NT Factor, which repairs cell membranes from cells that have been damaged due to the borrelia.

So for 3 days she kills the bad and some good bacteria but for 7 days she only restores the good bacteria.

How Does The Deanna Protocol Plan Fit Into All Of This

Deanna continues the DP Plan to supply energy to the cells under stress and to suppress her muscle symptoms. She no longer takes the [Cowden Support Program] CSP which is antibacterial and anti-parasite herbs because, after a year, I believe all the other parasites or bacteria other than the borrelia are now gone.

How This Applies To You

Your specific treatment protocol should be determined by your Lyme literate doctor according to the specific type of borrelia that are infecting your body.
I would recommend using the Pulsed Method for the reasons mentioned above.