Borrelia Bacteria & ALS
We have a strong body of evidence suggesting that ALS is likely caused by an undiagnosed infection with borrelia bacteria and at times coinfections Deanna and the vast majority of other individuals we have worked with who have ALS have been diagnosed with borrelia infections. Killing the borrelia bacteria is very important, but it is a hardy bacterium that is very tough to diagnose and even tougher to kill. Below, we explain how killing the bacterial infection relates to the Deanna Protocol and how to go about diagnosing and killing borrelia.
Can I just kill the borrelia and forget the Deanna Protocol Plan…or at least wait until I’m diagnosed with borrelia to start the Deanna Protocol?
You can, but the Deanna Protocol has nothing to do with the borrelia. Whether you have borrelia or not, the Deanna Protocol is beneficial for the nerve cells b/c it keeps them alive longer. Borrelia kills the nerve cells by taking energy away from them the Deanna Protocol supplies energy to nerve cells, regardless of what the cause of the lost energy is. Those who have been on the Deanna Protocol and the antibiotic treatment have found that the two work best in conjunction with one another. Those who take the Deanna Protocol immediately after being diagnosed with ALS (and continue taking it throughout and after the borrelia treatment) have reported much better results than those who either wait until after diagnosis to start the Deanna Protocol and those who treat the borrelia without the Deanna Protocol. Why? Treating the borrelia infection gets rid of the toxic environment in which your nerve cells have to fight so hard to stay alive but killing the bacteria does not get rid of the permanent damage that this bacteria does to your nerve cells before it’s killed. Remember, borrelia takes a long time to kill, so even while you’re treating it, it is still doing damage to your nerve cells. When permanent damage is done to the nerve cells, it is unknown if the function lost can be restored. Therefore, it is best to do something to help your nerve cells continue to function before, during, and after the treatment. The Deanna Protocol Plan helps nerve cells continue to function, remain alive, and thrive.
How do I get tested for a borrelia infection?
The borrelia bacteria is difficult to detect so we Deanna and others we have worked with who have ALS have done the following:
- They first do the provocative antibiotics test: For 21 days take orally Azithromycin 500 mg/day and Flagyl 500mg/day.
- Then, they get tested for the borrelia infection with the following tests by IGenEx
a. The IGenex test for borrelia is LTP3
b. The IGenex test for co-infections is CP3
c. Alternatively one can order the borrelia immunoblot. Then, if that is positive, order the tests for co-infections as this would be cheaper.
While no test on the market is considered very accurate, this IGeneX test is the most accurate one available. False negatives will be common, but false positives are highly unlikely. (Deanna and most people we have worked with who have ALS have had to take multiple tests over a series of several months to one year before testing positive. IGeneX and your Lyme Literate physician can help you decide how far apart to space your tests.)
If you have questions, can contact IGeneX directly
US: (800) 832-3200
International: +1 (650) 424-1191
How do I treat borrelia infections?
Those we have worked with who have ALS, Deanna included, have had the most success with the Pulsed Antibiotic Method. Normal oral antibiotics will not kill borrelia. Borrelia bacteria have protective coatings around them that are immune to antibiotics. The pulsed antibiotic method breaks down the protective coating around the bacteria to make it vulnerable to antibiotics and treats the bacteria before it is able to reproduce.
Here is the Pulsed Method that Deanna and others with ALS have used and found effective:
If you decide to follow this, please consult a Lyme literate physician (an infectious disease physician who considers Lyme Disease his/her specialty).
For three days, Deanna, takes IV Rocephin (an antibiotic) at 2 gms every 12 hours and Tinidazole (alternative to Flagyl, to open the cysts and allow the antibiotics to kill it). The dose of Tinidazole that she takes is 500 mg orally twice a day, one to two hours before the Rocephin antibiotic. This protocol is specific for the borrelia bacteria found in Deanna (borrelia recurrentis, according to IGenex). There are many different species and strains of the genus Borrelia and you’ll need a treatment specific to the species or strain of borrelia that you have. Further if you have co-infections these may have to be treated with added antibiotics
If you take Rocephin, you should also speak to your doctor about taking Actigall 300 mg orally 2 X a day to avoid the formation of gall bladder stones that can occur with Rocephin. Also, speak to your doctor about taking Diflucan 100 mg orally every Monday and Thursday to avoid fungal infections that can occur when taking high doses of Rocephin or other antibiotics.
What Deanna Takes to Replenish Good Bacteria
For seven days, to replenish good bacteria, Deanna takes PRESCRIPT-ASSIST, which combines probiotics and prebiotics. She takes Butyrate too, which is food for the good bacteria, to keep them alive, and NT Factor, which repairs cell membranes from cells that have been damaged due to the Borrelia.
So, for 3 days she kills the bad and some good bacteria, but for 7 days she only restores the good bacteria.