Winning The Fight

Update on Deanna’s Progress – 2025

HVHConsultingAdmin — Fri, 17 Jan 2025 16:54:40 +0000

Update on Deanna’s Progress – 2025

Dear friends and family,

As we close the chapter on another year, I am thrilled to share that Deanna’s ALS remains in remission, with no progression of the disease—a milestone that continues to defy expectations. Since identifying the underlying cause of her condition in 2015—a Borrelia infection—Deanna’s health has been stabilized with targeted treatments. Thanks to the Deanna Protocol and breakthroughs in understanding this disease, we’ve made strides that once seemed impossible.

Deanna’s Progress in 2025

Since we last shared her journey, Deanna has undergone significant advancements in her treatment. Autologous stem cell therapy, which was put on hold during the pandemic, has resumed and has been combined with intensive neurorehabilitation. Over the past three years, Deanna has completed several rounds of intensive occupational therapy and neuroplasticity training. This comprehensive approach has led to:

Increased muscle mass and strength in her upper body.
Notable improvements in dynamic movements and endurance.

Despite these gains, the improvements have yet to restore full independence. Our focus remains on integrating stem cell therapy with advanced therapies to push the boundaries of recovery further.

New Insights into Stem Cell Therapy

From our experiences and collaborations with other physicians, we’ve observed that autologous stem cell treatments work exceptionally well for repairing upper motor neuron and brain deficits but are less effective for spinal cord and lower motor neuron damage.

To address this gap, we’ve begun exploring nerve growth factor therapies derived from human nerve cells. While initial trials conducted without bacterial suppression were unsuccessful, our team is committed to advancing this technology with the proper infection control protocols in place.

Deanna received autologous stem cells derived from her adipose tissue. These cells are multipotent (mesenchyme stem cells ) MSC which are efficient for bone, ligaments and tendon but not nerve regeneration. Her cells were converted to IPSC (induced pluripotent stem cells) which are efficient for nerve regeneration. Her cells are now in the lab at UCF and being analyzed to determine the pathology and how they can be corrected.

Over the past 10 years every ALS patient who has had stem cells administered, all modalities, has not had their ALS curtailed b/c the borrelia infection kills the new cells also. So it is extremely important to eliminate or at least suppress the infection with appropriate treatment protocols and enhance immune system function.

Reaffirming the Bacterial Connection

Over the past decade, growing evidence has reinforced our belief that ALS and other neurodegenerative diseases are linked to bacterial infections, most commonly species of Borrelia and their co-infections. This connection has been further validated through:

Specialized testing: Advanced diagnostics from labs like IGeneX and Armin Labs reveal consistent bacterial presence in individuals with neurodegenerative diseases.
Positive treatment outcomes: Patients who receive proper antibiotic protocols often experience halted disease progression and, in some cases, partial recovery.

These findings have expanded beyond ALS to conditions such as Parkinson’s, Alzheimer’s, MS, and fibromyalgia. The pattern is clear: neurodegeneration often starts with an underlying bacterial infection.

Challenges and Resistance

Despite these breakthroughs, resistance within the medical community and insurance industry remains significant. Physicians are hesitant to embrace new ideas that challenge the status quo, and insurance companies often refuse to cover the long-term antibiotic treatments necessary for progress.

As a retired physician and a father, I approach this issue differently. For me, it is deeply personal. The stakes are too high to adhere to outdated protocols when credible evidence points to more effective solutions.

Deanna’s Legacy and the Path Forward

Over the past three years, Deanna’s story has inspired countless individuals facing neurodegenerative diseases to seek specialized testing and treatment. This ripple effect has led to improved outcomes for many, but there is still much work to be done.

Moving forward, we aim to:

Fund in vitro research to further investigate bacterial causes of neurodegeneration and identify the most effective treatments.
Advocate for better access to specialized testing and treatment protocols, particularly for tick-borne diseases.
Educate the medical community about the upstream causes of these diseases, shifting focus from symptom management to root-cause resolution.

Your Support Matters

Thanks to your donations, we have been able to fund critical research and support others in their fight against ALS and related diseases. Every contribution makes a difference, allowing us to challenge the status quo and bring hope to families facing these devastating conditions.

Your tax-deductible donations to Winning the Fight (WFND) directly support research efforts aimed at uncovering the upstream causes of neurodegeneration. Together, we can pave the way for a future where proper testing, treatment, and prevention are standard practices—not exceptions.

A Vision for 2025 and Beyond

Imagine a world where neurodegenerative diseases are preventable, where every patient receives proper testing, and where no family has to endure the heartbreak of watching a loved one suffer unnecessarily. This is the future we are fighting for—one step at a time.

Thank you for standing with us in this journey. Your support fuels our mission, and we are forever grateful for your contributions, encouragement, and belief in a better tomorrow.

Wishing you a healthy and prosperous 2025,

Vince Tedone, MD, FAAOS, FACS, FICS
Clinical Professor Orthopedics, University of South Florida (Retired)
Team Physician, University of South Florida (Retired)
Medical Director, Winning the Fight (WFND)

7th Annual – Shoot for the Cure

HVHConsultingAdmin — Thu, 09 Jan 2025 08:40:26 +0000

THE SILENT EPIDEMIC

HVHConsultingAdmin — Wed, 01 Mar 2023 15:36:48 +0000

THE SILENT EPIDEMIC

The various national associations for neurodegenerative diseases, university research, and government health care agencies are all controlled by big pharma. They concentrate on ameliorating the symptoms using chemicals foreign to the body often with adverse reactions and not on finding the cure. The Deanna Protocol (DP} main ingredients, noted below, are found naturally in our bodies and those ingredients are missing when nerve cells cannot communicate.
WFND research on ALS has led us to the fact that ALS, along with all other neurodegenerative diseases such as Alzheimer’s disease, Parkinson’s disease, multiple sclerosis, fibromyalgia, chronic fatigue, and many others have a common pathology, which is abnormal communication between nerve cells and between nerve cells and muscle cells. The symptoms of the diseases differ only because the cells involved are different. Further, our research on mice and human ALS nerve cells and human Alzheimer’s disease nerve cells has documented that the combination of AKG (alpha keto glutaric acid) and GABA (gamma amino butyric acid), which constitutes the Deanna Protocol reestablishes normal communication between the cells. The Deanna Protocol is not curative; however, evidence proves it slows the progression of the disease or condition, suppresses abnormal muscle symptoms, and improves cognition.

Since the mechanism of nerve communication is the same in all nerve cells and between nerve cells and muscles, the Deanna Protocol should be of benefit in any disease in which nerve communication is abnormal. In addition to NEURODEGENERATIVE DISEASES, this includes LYME DISEASE, AUTISM, CONCUSSION, STROKE, PTSD, and PSYCHIATRIC ILLNESSES including RAGE.

Clinical trials administered by universities focus on chemicals to treat the symptoms. Since this is the case, WFND has not been able to test the Deanna Protocol in clinical trials. However, we now have an acceptable method of circumventing this obstruction by using human diseased nerve cells in the laboratory. With adequate funding, we plan to document the benefit of the Deanna Protocol in all these diseases or conditions and document the causes of these diseases. The causes can be infection, toxins, trauma, fungi, or a combination of the previously mentioned factors. Once the cause is documented, these diseases can be cured. This is a major undertaking by WFND that is encouraged by several very reputable doctors who have helped with Deanna and other doctors who have documented the causes of the above-mentioned diseases and their successful treatment.

WFND is appreciative for your past and future support and together, this grass roots movement can overcome the silent epidemic.

Gratefully,
Vince Tedone M.D., FAAOS, FACS, FICS
Medical director WFND
www.winningthefight.org

UPDATES ON DEANNA’S PROGRESS IN 2021

HVHConsultingAdmin — Mon, 15 Nov 2021 03:01:44 +0000

Updates on Deanna’s Progress in 2025

Dear friends and family,

As we come to the end of another year, I am pleased to announce that Deanna’s ALS has still not progressed, which is unheard of with this disease. Since the cause of her disease was unknown until 2015, the disease progress was slowed dramatically with the Deanna Protocol, but loss of function continued. Once the causative agent of her disease was identified, we were able to treat it and eliminate the causative agent: a Borrelia infection. Earlier in 2024, Deanna was featured in a “Your Health” news segment on Spectrum Bay News 9 (Tampa, FL), titled “Defying the Odds of ALS”:

Deanna’s Stem Cell Treatments

You may recall that we were attempting to provide return of Deanna’s function using autologous stem cells. Unfortunately, due to the pandemic, that avenue was temporarily put on hold. Deanna has maintained her improvement in speech, muscle strength, and endurance that she experienced as a result of the stem cells. During the pandemic, Deanna began doing neuro intensive upper body program (a type of occupational therapy) that involved therapy four days a week, five hours a day for three weeks. She has done four intensive programs and has noticed a significant increase in muscle mass, strength, and improvement in dynamic movements. She has also used the concept of neuroplasticity, train other nerves to assume the activity of the lost nerves to take over control of lost muscle function. Despite the fact that she has improved significantly, in a physical sense, none of the improvements she has made have been large enough to increase her level of independence. The plan is to repeat stem cell therapy and immediately follow it with more intensive therapy. The hope is to get even greater improvement that will lead to increased functionality.

It has been my experience, and that of other physicians I am in contact with, that autologous stem cell treatments are very effective in correcting for upper motor neuron and brain deficits, but less effective in correcting for lower motor neuron and spinal cord deficits. There is another stem cell modality in which they extract nerve growth factors from the human nerve cells and then administer them. I believe this method may be more effective in restoring spinal cord nerves. Unfortunately, the company that developed this technology performed a clinical trial on ALS patients in which the infection was not suppressed.

Doctor Miller and I contacted them and expressed concern that, without suppressing the infection, their trial would fail. They were not interested in hearing from us. The trial did in fact fail. This statement that the trial would fail was not an opinion, but an educated hypothesis based on ten years of experiencing this result on many individuals with ALS, no matter what stem cell therapy was utilized. If you don’t kill the bacteria that is killing the cells in the first place, the bacteria will kill the new cells also. The company ignored our advice and proceeded to do a clinical trial on MS patients, which I am (unfortunately) confident will also fail because the bacteria is still present.

The Bacteria Connection

During this more than ten-year medical research odyssey, I have been fortunate to be in contact with several other clinicians, who have come to the same conclusion as I have. We strongly believe that ALS is caused by a bacterial infection, usually the genus Borrelia, of which there are many species and at times co-infections. Concomitantly, based on a large body of evidence, we all believe that many, if not all neurodegenerative diseases, are very likely caused by a bacterial infection, usually various species of Borrelia. To date, every individual we know with a neurodegenerative disease, who has been properly tested (emphasis on the word properly) and has reported back to us has been diagnosed with a Borrelia infection.

The diseases for which we have evidence of links to bacterial infection include ALS, PD, MS, most Alzheimer’s, Chronic Fatigue syndrome/myalgic encephalomyelitis, fibromyalgia, inclusion body myositis, many psychiatric diseases, and other less known diseases. Further, people who have asymptomatic tick-borne diseases and sustain a traumatic brain injury (concussion or sub concussion) have a greater incidence of psychiatric illnesses and ultimately death with chronic traumatic encephalopathy.

The Link to Bacteria Seems Unbelievable

Testing for these illnesses has to be done at a specialty lab because commercial labs do not have the correct antigens. I know this appears unbelievable. As a lifelong allopathic physician, I was in denial that my daughters ALS was caused by a bacterial infection. Plus, at the beginning of this odyssey in 2009, she was tested at a commercial laboratory for a Borrelia infection and her result was negative, by the criteria established by the CDC. Deanna’s positive test result from a specialty laboratory and her body’s dramatic response to antibiotic treatment (in addition to responses of others with ALS) made me believe that the cause of her diseases was a bacterial infection. She eventually tested positive for Borrelia in a specialty laboratory.

Then, I began hearing more from others with ALS, from individuals with other diseases, and from physicians treating these individuals. The same results were true. They were properly (emphasis on the word properly) tested for tick borne diseases and they all tested positive. Then, they were properly treated (again, emphasis on the word properly) and the disease progression stopped. In addition to this evidence, clinical evidence of bacterial infection has been found in individuals with all varieties of neurodegenerative diseases. Beyond Borrelia and coinfections, one also has to consider concomitant factors such as co-morbidities, toxins, viruses, fungi, trauma and vascular abnormalities.

Testing for Bacterial Infections

A provocative antibiotics method has been developed to draw the bacteria out of the soft tissue to Kill it and test for Its remnants (DNA) in the blood. However, specific tests are absolutely necessary to properly diagnose these infections. After the provocative antibiotics method is used, testing for the bacteria must be performed. The only test on the market that we have found to accurately diagnose Borrelia is the panel TBD #4 or TBD #6 from IGeneX. While IGeneX changes the names of the tests often, it is usually the #4 or the #6. I would recommend getting the most comprehensive test you can afford that tests for as many coinfections as possible.

Borrelia isn’t the only culprit. Co-infections cause many negative symptoms and chronic diseases, in their own right, so it’s best not to ignore them. In addition to IGeneX is also a lab in Germany called Armin Labs, for individuals who live in Europe. As many of you have already heard, the proper treatments for these bacterial infections vary. The treatment for Borrelia is the pulsed antibiotic method described on this website and the treatments for coinfections are different, depending on the coinfection.

Resistance in the Medical Community and from Insurance Companies

Neurologists and many neuroscientists refuse to accept the idea that a bacterial infection could be the causative agent of these diseases and conditions as I mentioned above. This idea of infection being the cause is simply too far outside the box and too far from the accepted industry status quo for most people to feel comfortable publicly entertaining it. No professional likes to be the first to stick his/her neck out and express an idea that flies in the face of everything that the industry currently believes. There is much risk involved in being “that person.” On top of this, physicians who have entertained the idea that infection is the cause have been challenged by medical boards and lost their licenses for treating these patients with antibiotics for prolonged periods of time (this is the only type of treatment that works for these conditions). Insurance companies are reluctant to pay for long-term antibiotic treatment have brought these cases against physicians. When you combine insurance companies fighting to make money with physicians being penalized for challenging status quo and treating patients correctly, you create an environment where status quo is regarded more highly than patients’ lives.

I Look at Things Differently Because it’s Personal

As a physician who is retired and as a father of a daughter with ALS, I have a different perspective than insurance companies and other physicians. During this whole journey, I have had nothing to lose by thinking outside the box…nothing but my daughter’s life, which was never an acceptable option for me. That has been enough to motivate me to move forward with any idea for which I can find enough credible evidence…regardless of how different it is from status quo or regardless of what others may think of me. One would think that, after spending billions of dollars on research (for the past 100 years) into these aforementioned diseases, someone with decision-making authority would have questioned the failed approach of their current methods by now. However, it seems that nobody has. It seems that the status quo continues. At this point in my journey, I have found that quite a few clinicians and scientists share the same beliefs as I mentioned above. One thing we all seem to have in common: we have loved ones with one or more of the diseases mentioned above. For us, this isn’t about our reputations. This is personal. Perhaps this is the type of perspective needed to move the medical community forward in this area. Nobody will fight to cure a disease like someone who has a loved one with that disease.

Tick Borne Diseases are More Common Than You Think

Not everyone has to have bitten by a tick to have a tick-borne disease. Tick-borne diseases are present in mosquitos, lice, sand fleas, fleas found on animals, and more. Deanna never actually found a tick on her body. As we know, Borrelia and co-infections can colonize the body for decades before causing symptoms. All it takes is one event (either physical or emotional) to suppress the immune system and the bacteria will multiply and begin causing symptoms. Many people likely are colonized by this bacterium without even knowing it. Each of those people is a ticking time bomb.

Deanna was A-Symptomatic for 15 Years

In retrospect, we know Deanna was colonized for Borrelia for about 15 years before it caused symptoms of ALS. She became very ill after returning home from a trip to Peru, where she went hiking. The illness she contracted had symptoms identical to an early-stage tick-borne illness, but she never actually found a tick. She got better after a few weeks and then, 15 years later, she was diagnosed with ALS when a few immune suppressing events happened in her life (pregnancy, stress of losing a loved-one, and exposure to toxins living in a house with Chinese drywall).

My Other Daughter Was Also Diagnosed with Borrelia and Bartonella Co-infection

In addition to Deanna, my other daughter who has suffered from a long list of chronic illnesses since she was a child, was diagnosed with Borrelia (a different species than Deanna has) and the coinfection bartonella. Despite living a very healthy lifestyle, being a healthy weight, and looking very healthy on the outside, she has always been sick and in pain since she was a child. Physicians diagnosed her with several very severe REM sleep disorders, severe insomnia along with idiopathic hypersomnia, chronic fatigue syndrome, colitis, dysmotility of the digestive system, severe food intolerances to every food group that exists, frequent migraines, rhinitis, sleep apnea, hypothyroidism, kidney disease, and more. Over the years, the pain and discomfort worsened, and the list of problems expanded, while my daughter visited many doctors with no answers other than the diagnoses above and receiving instructions to take pills to alleviate the symptoms. She pushed forward and learned to build a tolerance to the discomfort and pain. She has been on treatments for Borrelia for a month and Bartonella for a week and she has notice significant improvements with a variety of areas mentioned above: all conditions that many physicians have spent 30 years trying to treat, with no success. If she has noticed this much improvement in such a short time beginning, I hypothesize that her condition will only improve as treatment progresses. How many other people are out there like her, suffering in silence while they go to work, go to school, raise children, etc., despite the constant pain, discomfort, and far above normal level of exhaustion? These people push forward with their lives because they have no other option. Building a tolerance and “pushing through” while doctors prescribe ineffective pills to address the symptoms (rather than trying to find the cause) should not be the answer for these people.

More than Just My Daughter

Another family member of mine, who is a teenager, has had a variety of chronic symptoms and for most of his life, was just diagnosed with Borrelia, along with bartonella and babesia coinfections. Many of his symptoms are very common symptoms of these three bacterial infections. A family, who has struggled with several chronic illnesses for most of her life and has had no relief, was diagnosed with Borrelia, bartonella and other co-infections too. Her symptoms match the common symptoms of Borellia and the coinfections she has. This information, in addition to the countless positive Borrelia tests from individuals with neurodegenerative diseases creates a body of evidence that makes me wonder: How many other people are unknowingly colonized by tick-borne bacteria and are suffering, being shuffled from doctor to doctor with no relief?

A Better Future

Imagine if both of my daughters had been tested properly for tick borne diseases as children. Imagine the amount of anguish it would have saved them and our family. This is the future I envision for the medical community and the one I hope to achieve for not just my daughters, but for everyone…if anyone will listen. Why is it so difficult to get properly tested and treated for tick-borne diseases? Insurance companies will not cover the only specialty tests that can actually diagnose these diseases and physicians will not prescribe the proper treatment protocols because insurance companies don’t want to pay for them and will sue doctors who prescribe them! This is already happening. Physicians who treat people with tick borne diseases properly are losing their licenses due to lawsuits brought about by insurance companies.

A Way Forward for Tick Borne Diseases

When I first started in medicine in the 1960s, everyone who was admitted to the hospital, by law, had to have a test for a venereal disease (VDRL). None of these patients had symptoms of syphilis, but they were tested because at some point in their lives, if they were colonized by these microbes, they would develop the devastating symptoms of syphilis and would now spreading this diseases to their partners. Borrelia is in the same phylum as syphilis, caused by treponema pallidum, so asymptomatic people are spreading it to their partners. We need a simple mechanism to screen for Borrelia and co-infections when people are admitted to hospitals and medical clinics. With this, we will be able to eliminate many neurodegenerative diseases, psychiatric illnesses and other conditions that are linked to these bacteria. Right now, in the U.S., all we have is the IGeneX TBD4 or TBD6 test, preceded by the provocative antibiotics method. All other tests for tick-borne diseases have shown to be ineffective.

A Glimmer of Hope Was Lost

There was a proposal for a clinical trial before an internal review board at University of Texas, San Antonio to administer the provocative antibiotics method to all patients with a neurodegenerative disease and test them for bacterial infections at a specialty lab that has the appropriate antigens. This was a very exciting development and was a move in the right direction. My colleagues and I were hopeful that this would change the course of medicine in this area. Unfortunately, the proposal was denied. Here we are: back to the status quo, which is watching patients suffer and die while giving them ineffective pills to help with the symptoms of their diseases.

Researching The Wrong Things

All research (billions of dollars worth each year) focuses on what happens to cells after they are ravaged by disease, rather than focusing on the causative agent of these diseases. All research being done is downstream research on the abnormal proteins, enzymes, mutated genes, etc. that happen as a result of the disease. No valuable research is being done on the cause. I and my colleagues have shared our ideas about bacterial infections with a variety of individuals conducting research in this area and they are not interested in examining bacteria as a causative agent. My belief is that the downstream effects of these bacterial infections that destroy the cells are the abnormal proteins, enzymes and mutated genes, due to lack of energy in the infected cells. It is my strong opinion (backed by evidence) that no matter what causes the cell to lose energy, the downstream effects are the same.

Winning the Fight’s Plan

Winning the Fight would like to fund in vitro research on human nerve cells to establish the cause and the best treatment for neurodegenerative diseases and conditions mentioned above. We are prepared to help fund these trials. When you donate to our organization, this is where your donations will go. Remember, with the exception of one part-time hourly assistant, we are all volunteers and we don’t receive salaries. Our focus is research

What is Stopping the Research?

Unfortunately it is extremely expensive and we do not receive any funds from the well-known and established non-profits focused on ALS, MS, Parkinson’s, Alzheimer’s and other diseases. Most large organizations involved in medical research or fundraising, to date, have only been interested in pursuing the status quo and would likely suffer consequences for going against it, so unfortunately, I am not hopeful that things will change any time soon. The status quo is examining the damage and finding a foreign chemical to put into the body to alleviate symptoms, then launching this new drug into the market to make billions of dollars from that drug. This type of research leads to the most profitable outcomes and the largest return on research dollars invested. Researching bacterial infections that can be cured with low-cost antibiotics (that are already on the market in generic form) is not a profitable endeavor. The incentive behind largescale medical research is profit. This isn’t a dig at the industry as a whole. After all, every industry is focused on profit. Profit is necessary. Profit is a good thing. However, when the projects that benefit patients are at odds with the ones that are profitable, there is a choice to be made: money or patients’ wellbeing. Truthfully, failing to choose profit over patients’ wellbeing can have disastrous financial consequences for any large organization, so you can guess which option they often choose. They have to keep the doors open, keep the lights on, and keep their employees paid, so they have to choose profit. As a physician who is retired, I have the luxury of not being profit-focused, which enables me to see the situation through a very different lens. The best I can do is change things on my end, at a micro grassroots level, and hope these ideas catch on.

Thank You

Thank you to all who have donated, helped us spread the word, and shown concern for Deanna and others with ALS. You are such an integral part of helping us reach our goals and we are honored to support you in your fight against ALS and other neurodegenerative diseases. Your tax-free donations to WFND will allow us to fund research to prove the problem is upstream, the loss of energy not downstream, the abnormal proteins, enzymes and gene mutations. Please help us end this travesty and save the lives of our loved ones.

Sincere good wishes for a healthy and prosperous 2025,

Vince Tedone MD., FAAOS, FACS, FICS.
Clinical Professor Orthopedics, University of South Florida [retired]
Team Physician, University of South Florida [retired]
Medical Director WFND

SUMMARY OF DEANNA’S PROGRESS IN 2019

admin — Wed, 06 Oct 2021 05:31:46 +0000

SUMMARY OF DEANNA’S PROGRESS IN 2019

Dear friends and family,

As we come to the end of another year one reflects on the past and what is to come. I am pleased to announce that Deanna’s ALS has not progressed which is unheard of with this disease. Since the cause of her disease was unknown until 2015 the disease progress was slowed with the DP but loss of function continued. Once the causative agent of her disease was identified we were able to treat it and eliminate the causative agent , a borrelia infection.

Currently we are attempting to provide return of function using autologous stem cells. To date she has had two administrations in Cancun in February and August of this year. Her cells are grown in a laboratory in Houston but the FDA does not allow administration in the US. She has had some improvement in speech, muscle strength and endurance. The plan is to repeat the stem cells in February 2020. We will add hyperbaric O2 with the hope of enhancing cell energy to improve the result.

During this more than ten year medical research odyssey I have been fortunate to be in contact with several other clinicians who have come to the same conclusion as me. ALS is caused by a bacterial infection usually the genus borrelia of which there are many species and at times Co-infections. Concomitantly all agree that many if not all neurodegenerative diseases are caused by a bacterial infection usually various species of borrelia.

A provocative antibiotics test has been developed to identify the borrelia bacteria. To date every patient with a neurodegenerative disease who has taken the test has tested positive for a borrelia infection. This includes ALS, PD, MS and most AD. Testing has to be done at a specialty lab b/c commercial labs do not have the correct antigens. I know this appears unbelievable. Deanna’s response to antibiotic treatment made me a believer.

Neuroscientists refuse to accept a bacterial infection as the causative agent of these diseases. There are many reasons for this and one would think that after spending billions of dollars on research every year for these diseases, in some cases for over 100 years, that they would question their failed approach.

There is now a proposal for a clinical trial before an internal review board at UT San Antonio to administer the provocative antibiotics test to all patients with a neurodegenerative disease and test them at a specialty lab that has the appropriate antigens.

www.Winningthefight.org [ WFND ] our 501c3 not for profit foundation would like to assist in clinical trials to establish the cause and the best treatment for neurodegenerative diseases. Your tax free donations to WFND will assist in this endeavor.

Sincere good wishes for a healthy and prosperous 2020,

Vince Tedone

DEANNA STEM CELL THERAPY RESULTS

admin — Wed, 06 Oct 2021 05:44:49 +0000

DEANNA STEM CELL
THERAPY RESULTS

DEANNA STEM CELL THERAPY RESULTS

The Pulsed Method Helped Deanna

Deanna received stem cell therapy in February and again in August of 2019. Since receiving her first round of stem cells, Deanna’s speech therapist has noted the following changes in her sessions. been noted in therapy sessions:

Reduced nasality overall when speaking; and moments of nasality were classified via a slight “leak” of air vs more of a continuous burst of air that was taking place throughout sets pre stem cells. Deanna also reports that the air does not fully pass through her nose as it was previously.
Less visible “force/strain” when talking with oral musculature and neck muscles
Ability to hit speech sound targets with greater ease and clarity
More control in modulating fast vs. slow pacing in sets of vocal exercises. She has also changed set format to include slower more deliberate production to work on enunciation as well as musculature control.
Continuing to beat previous records across vocal exercise sets
During sessions where fatigue is present, her ability to complete sets is not impacted by fatigue the way one would correlate (i.e. increased fatigue, decreased performance). Deanna has had sessions in which she has met new records on days in which she is experiencing increased fatigue.
Overall improved volume

Deanna is being treated by Brieann Y. Papp, M.S. CCC-SLP – Speech & Language Pathologist and owner of All About Speech and Language, Tampa, FL

Physical Therapy Improvements

MMT			12/5/18		8/8/19
JOINT	MOTION	POSITION	LEFT	RIGHT	LEFT	RIGHT
Hip	Flexion	Seated	4-	4	4	4+
	Abduction	Seated	5	5	5	5
	Adduction	Seated	5	5	5	5
	External Rotation	Seated	4+	4+	4+	4+
	Internal Rotation	Seated	4	4	4+	4+
Knee	Flexion	Seated	5	5	5	5
	Extension	Seated	5	5	5	5
Ankle	Dorsiflexion	Seated	2	2	2	2
	Plantarflexion	Seated	5	5	5	5
	Inversion	Seated	4	3+	4+	4+
	Eversion	Seated	3+	3+	4-	4-
Shoulder	Flexion	Seated	2	2	2	2
	Abduction	Seated	2	2	2	2
	Adduction	Seated	4+	4+	4+	4+
	Internal Rotation	Seated	4-	3+	4+	4
	External Rotation	Seated	Elbow Ext. with attempt bilaterally		Unchanged
	Extension	Seated	4+	4+	4+	4+
Elbow	Flexion	Seated	4	4	4	4+
	Extension	Seated	4	3+	4+	3+
Forearm	Pronation	Seated	3	3	3	3+
	Supination	Seated	3	3	3+	3
Wrist	Flexion	Seated	3+	3+	3+	4-
	Extension	Seated	3+	3	3+	3+
	Radial Deviation	Seated	3+	3	3+	3+
	Ulnar Deviation	Seated	3	3	3+	3+
Finger Intrinsics		Seated	Digits 1, 4, 5 extend; 2, 3 remain flexed; able to make closed fist		Unchanged

Deanna Tedone
Cathy Kuba, PT, MPT, DNSET
Red denotes improvements

THE PROVOCATIVE ANTIBIOTIC TEST

admin — Wed, 06 Oct 2021 04:56:50 +0000

THE PROVOCATIVE
ANTIBIOTIC TEST

The Provocative Antibiotic Test was devised by Alfred Miller, MD to determine if your neurodegenerative disease is caused by the borrelia bacteria and co-infections.

For 21 days take orally Azithromycin 500 mg/day and Flagyl 500mg/day.

The IGenex test for borrelia is LTP3

The IGenex test for co-infections is CP3

Alternatively one can order the borrelia immunoblot. Then, if that is positive, order the tests for co-infections as this would be cheaper.

Any questions they can contact IGenex directly
US: (800) 832-3200
International: +1 (650) 424-1191
Email: customerservice@igenex.com

A CURE FOR ALS AND OTHER NEURODEGENERATIVE DISEASES?

admin — Wed, 06 Oct 2021 05:03:56 +0000

A CURE FOR ALS AND OTHER NEURODEGENERATIVE DISEASES?

A Cure for ALS and Other Neurodegenerative Diseases?

A Cure for ALS? I believe that the Pulse Method plus stem cell therapy may return some of Deanna’s physical function. Allow me to explain. First off, I believe Deanna’s borrelia infection is finally under control. (For those of you who haven’t heard, read more here about Deanna’s ALS and the connection with borrelia bacteria.) Onset of symptoms in 2007 were treated with the Deanna Protocol from 2009. Once we determined that she had a borrelia infection in 2015, we began a combined treatment with the CSP and antibiotics for approximately one year. There were intervening complications but approximately one year ago she was started on the Burasscano pulsed method (starting and stopping the antibiotics at regular intervals with periods on antibiotics followed by periods off).

The Pulsed Method Helped Deanna

Before I explain Deanna’s reaction to the Pulse Method, I need to explain two terms: (1) Herxheimer reaction and (2) CD 57 test results. A Herxheimer reaction is a painful inflamatory reaction that occurs when borrelia bacteria is being killed off by antibiotics. Herxheimer reactions indicate that borrelia is dying. CD 57 test results show the number of natural killer cells in the body that are able to kill off infections. When CD 57 levels are normal, this is an indication that a an infection (in Deanna’s case, a borrelia infection) is under control. Keep these terms in mind when reading my explanation below about Deannna’s reaction to the pulsed method antibiotic treatment.

Since beginning the pulsed method, Deanna has had a Herxheimer reaction approximately every 3 to 4 weeks. In the past two months, however, she has not had a Herxheimer reaction. Beyond this, her CD 57 has remained in the normal range for approximately the past year. Due to these factors, I now believe the bacteria in Deanna’s body is under control. With the bacteria under control, I now believe it’s time for stem cell treatment. With the bacteria under control, any new cells that are introduced/grown via stem cell therapy will be able to remain alive and function without becoming infected by borrelia.

The Oral Pulse Protocol

Developed by Dr Al Miller to which I have added Butyrate, used in diseases which are not progressing rapidly instead of the IV pulsed antibiotics treatment.

Every Mon, Tues, Wed, Ceftin 1000mg BID [500 mg tablets] probenecid 500 mg BID, Metronidazole [Flagyl or Tinidazole] 500 mg BID
Every Thurs. and Sat. Diflucan100 mg in AM only
NT Factor 2 tabs T.I.D every day
R-Lipoic acid I Q AM at least 30 minutes before eating
Probiotic Q.D. at noon [Culturelle} and Butyrate By Body Bio Q.D.

The Deanna protocol should be used in conjunction with whatever treatment modality is used. Treatment for all Neurodegenerative diseases should be:

The DP to keep cells alive and improve signaling b/c once function is lost it may not be possible to recover it.
Combination of antibiotics to eliminate biofilm and specific for pathogen/pathogens present

Stem Cell Therapy After Pulsed Method Treatment Should Work

Her functional deficit involves her shoulders, hands, voice, legs, feet and proprioception. I have strong reason to believe that her function will return in many areas after stem cell therapy…only because she was treated with the pulsed method to get rid of the bacteria (in conjunction with a program to replenish the good bacteria in the body too). Other patients who have received stem cell therapy without controlling infections first, have not been so lucky. For the past 10 years every ALS patient or neurodegenerative disease patient who has been treated with stem cells, around the world, has reported improvement, but then worsened as the disease continues to progress. Why?

Previous Stem Cell Therapy Trials & Why They Failed

Dr. Alfred Miller and I hypothesize that the stem cell therapy does not work with ALS patients because the borrelia bacteria in ALS patients attacks the new cells that are introduced via stem cell therapy. It makes sense, right? When a disease is spreading throughout a person’s body and you introduce new/healthy cells, wouldn’t the disease spread to those healthy cells too? We strongly believe this is the case and multiple physicians agree. If the medical community as a whole doesn’t believe it, it’s at least worth testing. But, nobody is testing it…nobody. Why?

The mainstream medical community hasn’t even acknowledged the connection between bacteria and ALS yet (even though some individual physicians do). Thus, the idea of killing off borrelia bacteria before treating a person with stem cells is not on their radar. Unfortunately, ALS patients are suffering and dying while we wait for the medical community acknowledge this idea. Actually, right now, research institutions are running clinical trials for ALS and other neurodegenerative diseases. I strongly believe that these trials will fail because the neuroscientists do not accept the fact the idea borrelia bacteria may have to be suppressed before introducing healthy stem cells into the body. Once again, stem cell therapy will be deemed “ineffective,” when in reality, it could be very effective. It just isn’t being used in the correct context.

Stem Cell Therapy Plan for Deanna

We now intend to start her on stem cells. .The source of these stem cells is at present unknown and being researched. Once the best option is determined we will post it on this web site and follow up with the result for Deanna.

Borrelia Infection in Alzheimer’s & Other Neurodegenerative Diseases

As I’ve mentioned in other areas of this website and blog, Dr. Alan MacDonald has documented borrelia in Alzheimer Disease and nematodes and borrelia in MS at autopsy. Dr. Judith Miklossy has also independently documented borrelia in Alzheimer Disease at autopsy. According to Dr. Al Miller, every Parkinson’s Disease patient that has taken the provocative antibiotics test has tested positive for borrelia. Dr. David Martz has also reversed his ALS with antibiotics. So we now have plenty of anecdotal proof from individual medical experts that neurodegenerative diseases can be caused by a borrelia infection and probably co-infections.

Changing the Course of Research

We must convince neuroscientists to begin research to determine a method to document the borrelia and co-infections in neurodegenerative diseases. Then, we may develop appropriate treatment for these infections. Once research focuses on controlling borrelia infections, research can then focus on restoring neurological function using a form of regenerative medicine such as stem cells. This could be our way to a cure and return to normalcy. Unfortunately, I doubt any research institutions will invest in this. How come?

All About the Money

Research on ALS and other neurodegenerative diseases isn’t a money maker. Any research that doesn’t result in the ability to sell/make money from a pharmaceutical drug is not a money maker. Therein lies the problem. Research institutions have to keep their doors open and pay salaries, and it takes money to do that. They don’t waste money funding studies that result in zero or little return on investment. I understand that. It’s basic economics…but should people be dying because their diseases aren’t profitable? We have to do better. We need private funders who have a personal interest in curing these diseases.

If you’d like to donate to fund our research, click here. Unlike research institutions, our administrative costs are extremely low. If you donate to us, your money will go toward research when you donate. We don’t have offices to pay for or regular salaries to pay. We’re a primarily volunteer part-time staff. The only people we pay are one part time administrative assistant and the scientists doing our research in labs at University of South Florida.

DEANNA IS ON THE PULSED METHOD

admin — Wed, 06 Oct 2021 05:53:33 +0000

DEANNA IS ON THE
PULSED METHOD

DEANNA IS ON THE PULSED METHOD

My daughter has been following the Pulsed Method of antibiotic treatment for borrelia infection. (Click this link to read more about the connection between ALS and borrelia bacteria, if you haven’t read about it already.)

Here is how the Pulsed Method works

For three days she takes IV Rocephin (an antibiotic) at 2 gms every 12 hours and Tinidazole (alternative to Flagyl, to open the cysts and allow the antibiotics to kill it).

The dose of Tinidazole that she takes is 500 mg orally twice a day, one to two hours before the Rocephin antibiotic. This protocol is specific for the borrelia bacteria found in Deanna (Borrelia Recurrentis, according to IGenex). There are many different species and strains of borrelia and you’ll need a treatment specific to the species or strain of borrelia that you have.

If you take Rocephin, you should also speak to your doctor about taking Actigall 300 mg orally 2 X a day to avoid the formation of Gall bladder stones that can occur with Rocephin.

Also, speak to your doctor about taking Diflucan 100 mg orally every Monday and Thursday to avoid fungal infections that can occur when taking high doses of Rocephin or other antibiotics.

What Deanna Takes To Replenish Good Bacteria

For seven days, to replenish good bacteria, Deanna takes PRESCRIPT-ASSIST, which combines probiotics and prebiotics to replenish the good bacteria. She takes Butyrate too, which is food for the good bacteria, to keep them alive, and NT Factor, which repairs cell membranes from cells that have been damaged due to the borrelia.

So for 3 days she kills the bad and some good bacteria but for 7 days she only restores the good bacteria.

How Does The Deanna Protocol Plan Fit Into All Of This

Deanna continues the DP Plan to supply energy to the cells under stress and to suppress her muscle symptoms. She no longer takes the [Cowden Support Program] CSP which is antibacterial and anti-parasite herbs because, after a year, I believe all the other parasites or bacteria other than the borrelia are now gone.

How This Applies To You

Your specific treatment protocol should be determined by your Lyme literate doctor according to the specific type of borrelia that are infecting your body.
I would recommend using the Pulsed Method for the reasons mentioned above.