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Wed, 16 Nov 2016 21:51:27 GMT

Can anyone help? .... I had real problems ingesting AAKG tablets, so I have recently moved onto powder, which I take with a fruit smoothie. My question is .... how much should I be taking? I am a runner with Progressive Bulbar Palsy. I am still managing to get out to run - 20 to 30 mountain miles per week. Thanks

Winning the Fight Moderator
Mon, 21 Nov 2016 15:19:28 GMT

Thank you for checking in with your question. Glad you are running. Individuals following the protocol should work their way up to the dose of AAKG. The amount of up to, but not exceeding 18g per day is a guideline only. One should monitor their muscle symptoms [fasciculations and twitching] to determine if they are taking enough AAKG. The dose is also dependent on the size of the individual, degree of exercise and rapidity of disease progression. As far as powder supplements, you may want to look into Simplesa ( They make a powder form of the DP supplements that many find to be easy to take and cost effective when compared to individual supplements. Please log in to the website ( and download the most recent protocol document. You may email or post an additional comment here with any questions that are not answered by the document. Stay Strong!

Tue, 29 Nov 2016 08:13:57 GMT

Thanks for the reply .... and good luck with all the great work you are doing .... anything we can do to help give PALS hope is good ... I'll update my ALSFRS regularly. God bless Steve

Tue, 25 Feb 2020 22:43:30 GMT

I have a ALS, C9ORF72 mutation which causes frontotemporal dementia also. How much I need take AAKG now I take about 20mg now and I don’t have fasciculations. And how much Niacin need to take? I also take GABA, CoQ10, L-lysine, E3AFA and MCT oil. What is your recommendation to take?